Monday, April 8, 2013

The Beginning of our Journey with ASD

I shared my love letter to ASD in my Facebook wall and the response was just awesome. People who I haven't talked or seen in ages were liking and sending me words of encouragement, support, and admiration. I shared Milo's diagnosis not to gain likes or display my brilliant mothering skills (insert evil laugh here), but to raise awareness one person at a time. I am now inspired to write again. This blog has now a defined purpose, which is to share our journey with autism. I am not an expert on autism or motherhood, but I am expert when it comes to Milo.

I know there are already tons of personal blogs out there telling stories of autism and how they are coping. I'm not promising that mine will be different, but you've seen one person with autism and you've only seen one person with it. People under the spectrum are all wired differently. What applies to Milo is not necessary applicable to other persons with autism (PWA) and vice versa.

To every journey, there is a beginning and this is how ours started:

Milo looked like a "normal" kid. He liked (and still likes) Jollibee, sang the ABC, counted one to ten, identified objects, etc. etc. But, he liked to play alone, got frustrated when his toys are disturbed, slept at 4 o'clock in the morning, liked wearing his same green shirt everyday. He knew his ABCs well that he can recite it ZYX. He counted to ten in English, Tagalog, Ilocano, and Spanish. He read simple words, added large sums of numbers, knew the colors of the rainbows and their respective shades, operated the computer, etc. etc. All this he did excellently before he was four. He didn't like sudden loud sounds or he wasn't looking in your eyes when he talks to you. He ignores you when you call him. He was not your typical boy and it didn't raise alarm for us. We just let him be.

Before he started nursery last June 2012, I was already scouting for professionals who assess children for giftedness. I wanted him assessed so I can properly guide him and not for anything else. If it, indeed, turns out he is a math genius, well and good, but, if not, still well and good.

He started nursery that June without an assessment as the earliest schedule we could book was in October and I was looking as early as April. By July, Milo's language teacher wanted to talk me and I was nervous. What could've my kid done? Has he misbehaved too much in school? I went right away and his teacher told me that:
  1. When Milo's done with his seatwork, he'd hum;
  2. He'd also go to the the toys shelf and play by himself;
  3. He writes very "madiin";
  4. He's not very sociable; and
  5. He reads very well, but unable to totally grasp the concept of what he has read.
Milo's teacher advised me to have him assessed and right there then and then, I already knew that she was referring to another kind of assessment, not for giftedness, but for his quirkiness. I said OK right away and his class adviser was rather surprised with my cooperation. Why would I delay something that could probably help me understand my child more? Up to this day, I do not regret saying "yes".

Thursday, March 7, 2013

A Love Letter to ASD

Dear Autism Spectrum Disorder,

You've been with us for over six months now and I haven't formally welcomed you for I was secretly wishing that you would go away. I guess you fell in love with Milo, my little man, that you decided to stay. Since I cannot force you to leave, I'm welcoming you as a part of the family. I don't hate you, but I don't actually like you either. I don't like you because I don't totally understand you. Yet. Even with all the research and reading I've done, I still cannot fathom your entirety. I don't like you because you're pricey. You're expensive to maintain, but I'm thankful I have my mom and sister to help me with my Milo's occupational therapies and comprehension lessons. If not for your complexity and expenses, I might even fall in love with you for you have made my little man wonderfully special. Without you, Milo would just be another boy. You blessed him with another kind of giftedness. You gave me the opportunity to realize that I have more love, patience, and understanding to give than I realized.

Thank you for the gift of love for numbers. As early as three years old, he was adding large numbers while reading them properly. He can count from 1-10 in seven languages and up to a hundred in four languages. He did all these by himself by watching videos on YouTube. Yes, he knows how to operate gadgets and search the web. I let him without restrictions because I know he is not interested in sex and violence.

Thank you for the gift of reading. If I remember correctly, he was able to read short words even before he turned three. I was amazed and did not realize that it was already you. I only thought that he was a smart kid. He is a smart kid. Without a doubt. However, his therapists are working on his comprehension skills. While he can read like an 8-year old, they worry that he is unable to grasp the context of what he is reading. I'm not worried at all because I am confident that he understands. You only have to be patient with him.

Thank you for the gift of photographic memory. He remembers when I scold him. Even the shirt I was wearing. He remembers all the birthdays of the members of our household. From his lolo to our kasambahays. He remembers who owns what shirt or shoes. He remembers passwords. He remembers that good and bad that you have done to him. If you want something remembered, you should tell it to him and he would keep in in his memory. I just wish that we he grows up, he'll remember all the love and happiness we shared with him.

Thank you for the gift of words. I understand that other persons in the spectrum are non-verbal and they are unable to say "Mommy". I have now more appreciation of the words he says because I know someone, somewhere, is longing to hear "Mommy".

Thank you for the gift of touch. Some persons in the spectrum are sensitive to touch, but not Milo. You can hug him. Kiss him. Cuddle him. Tickle him. There are moments when he doesn't want to be touched, but it's very minimal. Every moment spent with my little man is truly magical.

Thank you for the gift of social interaction. Surprisingly, Milo has learned to socialize and make friends. His classmates adore him because he is effortlessly funny.

Thank you for the gift of emotion. While he truly does not understand all of it, he knows happiness and sadness. He knows laughter and tears. Someday, I know, he will fall in love. 

For the record, I am not romanticizing my relationship with you. Since it looks like we'll be spending a lifetime together, we might as well be partners. However, it doesn't mean that you will define my son.  He is Milo. The boy who I love with all my being and NOT the boy with autism. He is Milo and you are autism. Let him be my little man and I'll let you to be you.

Since you are now a part of our family, you go by our rules. First, we will not use autism as an excuse to get special treatment. Next, we will be cooperative at all times. I know you need your therapies to keep you at bay and I will see to it that you get these. In return, you promise to behave at all times. Lastly, we will not let others put us down. I will not allow people bullying us or pitying us. I will stand up for you and for my son.

People should understand that you are not a disease. You are a condition that needs extra love, a lot of patience and understanding, and tons of acceptance. I have all of that to give you because I love my son to infinity and beyond.

Milo is just four. You have a lifetime of togetherness. You are a challenge and not a roadblock. You are both a blessing and a curse. But I am confident that Milo will bring out the best in the both of you. Again, welcome to our family and let's make the most out of this journey.

With extra love, a lot of patience and understanding, and tons of acceptance,

Milo's Mommy

Thursday, January 3, 2013

2013 Goals

I've stop making new year's resolutions a few years ago. I cannot keep them. So, in exchange of resolutions, I've made goals. To differentiate a resolution from a goal, according to lifehacker.com, " If there is a specific achievement it's a goal, but permanent changes to your life are resolutions since you keep doing them every day and not just until a specific achievement is reached."

For 2013, I have set seven goals. One for each day of the week.

Meatless Mondays
Tubig Tuesdays




Workout Wednesdays

Thankful Thursdays
Finances Friday
Sama-sama Saturdays
Simba Sundays
My goals are no brainers. but it doesn't mean that they are easy to achieve. They are very doable, but would take some effort on my part. I'm a carnivore and a Coke drinker, so a day without meat or Coke is difficult for me. Working out is also difficult for me. Some goals are easier than the others.  I could do this. I will do this. Wish me luck, though.

Tuesday, January 1, 2013

Hello, 2013!!!

Source: http://happynewyear2013smswishes.com/wp-content/uploads/2012/12/Happy-New-Year-2013-HD-Wallpaper-2.jpg


It's officially 2013 on my side of the world. Cheers to better days ahead!

Monday, December 31, 2012

2013!!!



In about eight hours, we bid goodbye to 2012 and welcome a fresh new year. 2012 has not been exactly in my favor. The odds were mostly against me. I'm not complaining because at the end of it all, I realized I am tough woman who is ready to face any thing with the love and support of my family and inspiration from my children. No new year's resolutions for me. I only have goals. (See "To Do Before I'm 40" side bar.)

I am optimistic that 2013 will be better. I have an upcoming promotion to begin with and a travel getaway abroad with my beloved sisters, but my dear husband has to leave the country and work abroad. I will be officially an OFW wife on January 16th. It will not be easy. We've sat and talked with the kids, aged 4 and 3, and our little boy said that he'd rather not go to an expensive school para wag lang umalis si Daddy. Sad daw sya kasi hindi kami complete. Coming from a 4-year old, that was heartbreaking. I haven't completely absorbed that Jowell is leaving in two weeks, but when 2013 kicks in and the countdown to his departure begins, I'll die a little every day. We will survive.

2012 has been a tough year, but I'm just glad it did not end when Gangnam Style reached one billion views.  We have another 365 days to spend with our love ones, correct the mistakes of the past, reach the goals we missed. We all have another chance to be better persons. Cheers to 2013!!!

From my family to yours, a happy, blessed, and prosperous new year.

Sunday, December 2, 2012

Food Trip A-Z: Xin Wang Hong Kong Cafe


Lot 199, 1100-1101 (EM)
SM Mall of Asia
Central Business Park
Bay City
Pasay City 1300,
Metro Manila

This is such a pathetic food trip entry not because the food was bad, but because we dined here almost four months ago and I can't find pictures of food we ordered. Gah! I can't even remember a thing we ordered, but hey, this is "X" and there are not that many restaurants that start with "X", di ba? So, spare me. Hahaha.

I remember the food to be huge, shareable, and affordable. Taste is masarap naman, but not remarkable na mapapa-ooohhh ka. Not your typical Chinese resto. It's a fusion of east meets west. The resto was jam-packed even if it was almost closing time. When we were leaving, may mga papasok pa. I guess they close late.

If you're in MOA, I suggest you try it. Maski once lang para may "X" na din kyo.

31 Things I'm Thankful For: Day 2


Taken last October 26, 2012 when the kids attended Spooktacular at Active Fun, BHS.
I've always wanted to have kids on my own. There was even a time when I was willing to be just a mother and not a wife. I'm thankful that God made me both. My children are the essence of my being. I live because of them. I try to become a better person because of them. They are love. They are happiness. They complete Jowell and I. Milo and Pretzel are our most precious treasures. I can no longer imagine life without them. They are our lives. One day they'll grow up and have their own lives separate from us, but I'll always be grateful that God chose me to be their Mommy. I might have done some very remarkable things in my past that I was blessed with these two awesome human beings. I love you both, always and forever.

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